MOST teenage boys love to run around and play – but ‘Butterfly Boy’ Jonathan’s skin is so delicate it falls away at the slightest knock. 

Fourteen year-old Jonathan Pitre, from Russell, Canada, lives in constant pain as 90% of his skin blisters and peels from his body - making it look as if he has third degree burns. 

The excruciating pain is so bad he has constant headaches and nausea, and often spends nights awake in agony. 

Helpless mum Tina Boileau, 35, has to watch her son writhe in pain as she wraps him from head to toe in bandages to ensure he doesn’t get infections.

His name is Jonathan Pitre and he suffers from an extremely rare… 

skin condition called: Recessive Dystrophic Epidermolysis Bullosa (RDEB). 

This disease cause Jonathan’s skin to fall off with the slightest touch and sometimes even by itself. 

He’s had this since he was a baby and according to doctors he is expected to live no longer that 25 years! 

At such a young age he’s learned to not only accept his reality, but also embrace it with the best attitude. 

He now raiser awareness about this rare skin condition and helps thousands of families to learn and cope with the disease. 

Needless to say this brave and unique young man will always be in our hearts and so will the deeds he’s done and will continue to do for as long as he lives. 

Best of luck to you Jonathan! Please share his story so that people can have perspective when they feel overwhelmed with their problems!

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